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March 3, 2021

Saving Sight with Robert Bellizzi, The Corneal Dystrophy Foundation

Saving Sight with Robert Bellizzi, The Corneal Dystrophy Foundation

In this episode, since most podcasts “podfade” by episode 7 (and since this is #7 if you count our trailer episode) we honor the podcasts that helped us get started, from the friendly podcasters who offered advice to those who offered air time. A...


In this episode, since most podcasts “podfade” by episode 7 (and since this is #7 if you count our trailer episode) we honor the podcasts that helped us get started, from the friendly podcasters who offered advice to those who offered air time. A big shout out is due to Carolyn Kiel of Beyond 6 Seconds, Anne Marie Cannon of Armchair Historians and Mathew Passy of Causepods (links to each show are below this intro).

This episode is special in another way. I explore the difficulties experienced by those diagnosed with rare diseases as I interview my father-in-law, Robert Bellizzi. Bob is the Executive Director and Founder of The Corneal Dystrophy Foundation. He started this not-for-profit organization back in 1998 as a grass-roots patient to patient online support group called Fuchs’ Friends. This platform provides resources that did not exist, trailblazing a platform that enabled patients to support one another. Fuchs’ Friends and The Corneal Dystrophy Foundation now serves patients in over 150 countries and has a current membership of approximately 3000.

Guest Website:
Corneal Dystrophy Foundation:
https://www.cornealdystrophyfoundation.org/

Podcasts Acknowledged:
Beyond 6 Seconds, Hosted by Carolyn Kiel:
https://www.beyond6seconds.net/

Armchair Historians, Hosted by Anne Marie Cannon
https://www.armchairhistorians.com/

CausePods, Hosted by Mathew Passy https://causepods.org/podcast/live-well-by-doing-goodwith-corinna-bellizzi-of-the-care-more-do-better-podcast/

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Robert Bellizzi

Founder & Executive Director, The Corneal Dystrophy Foundation

Robert Bellizzi. Bob is the Executive Director and Founder of The Corneal Dystrophy Foundation. He started this not-for-profit organization back in 1998 as a grass-roots patient to patient online support group called Fuchs’ Friends. This platform provides resources that did not exist, trailblazing a platform that enabled patients to support one another. Fuchs’ Friends and The Corneal Dystrophy Foundation now serves patients in over 150 countries and has a current membership of approximately 3000.